NEUMOLOGÍA PEDIÁTRICA
C o n t e n i d o d i s p o n i b l e e n h t t p : / / www. n e umo l o g i a - p e d i a t r i c a . c l 28 Cuidados respiratorios de los pacientes con atrofia muscular espinal Neumol Pediatr 2021; 16 (1): 23 - 29 REFERENCIAS BIBLIOGRAFICAS 1. Palomino MA, Castiglioni C. Respiratory care in spi- nal muscular atrophy in the new therapeutic era. Rev Chil Pediatr [Internet]. 2018 [citado 10 de octubre de 2020];89(6):685-93. Disponible en: https://pubmed. ncbi.nlm.nih.gov/30725056/ 2. Bach JR. Management of patients with neuromuscular disease. 1 ed. Philadelphia: Hanley & Belfius; 2004. 350 p. 3. Swoboda KJ, Prior TW, Scott CB, McNaught TP, Wride MC, Reyna SP, et al. Natural history of denervation in SMA: Relation to age, SMN2 copy number, and function. Ann Neurol. 2005;57(5):704-12. 4. Niranjan V, Bach JR. Noninvasive management of pe- diatric neuromuscular ventilatory failure. Crit Care Med. 1998;26(12):2061-5. 5. Bach JR, Tuccio MC, Khan U, Saporito LR. Vital capaci- ty in spinal muscular atrophy. Am J Phys Med Rehabil. 2012;91(6):487-93. 6. Giménez GC, Prado-atlagic FJ. Clasificación de sub-tipos de atrofia muscular espinal tipo 1 y 2 según capacidad vital y evaluaciones respiratorias específicas. Med Clíni- ca y Soc. 2019;3(3):73-81. 7. Bach JR. Update and perspective on noninvasive respi- ratory muscle aids: Part 2: The expiratory aids. Vol. 105, Chest. American College of Chest Physicians; 1994. p. 1538-44. 8. Bach JR, Bravo Quiroga L, Paz L. Soporte respiratorio muscular para evitar el fallo respiratorio y la traqueoto- mía: ventilación no invasiva y técnicas de tos asistida. Rev Argentina Med Respir. 2013;2:71-83. 9. Finkel RS, Mercuri E, Meyer OH, Simonds AK, Schroth MK, Graham RJ, et al. Diagnosis and management of spinal muscular atrophy: Part 2: Pulmonary and acute care; medications, supplements and immunizations; other organ systems; and ethics. Neuromuscul Disord. 2018;28(3):197-207. 10. Bach JR, Alba AS. Management of chronic alveolar hypo- ventilation by nasal ventilation. Chest. 1990;97(1):52-7. 11. Bach JR, Rajaraman R, Ballanger F, Tzeng AC, Ishikawa Y, Kulessa R, et al. Neuromuscular ventilatory insufficiency: Effect of home mechanical ventilator use vs oxygen the- rapy on pneumonia and hospitalization rates. Am J Phys Med Rehabil. 1998;77(1):8-19. 12. Bach JR, Gupta K, Reyna M, Hon A. Spinal muscular atrophy type 1: Prolongation of survival by noninvasive respiratory aids. Vol. 22, Pediatric Asthma, Allergy and Immunology. Mary Ann Liebert, Inc. publishers 140 Hu- guenot Street, 3rd Floor New Rochelle, NY 10801-5215 USA; 2009. p. 151-61. 13. Simonds AK. Respiratory support for the severely han- dicapped child with neuromuscular disease: Ethics and practicality. Vol. 28, Seminars in Respiratory and Critical Care Medicine. Semin Respir Crit Care Med; 2007. p. 342-54. 14. Chiswick ML, G Milner RD. Crying vital capacity measu- rement of neonatal lung function. Arch Dis Child [Inter- net]. 1976 [citado 10 de octubre de 2020];51(1):22-7. Disponible en: http://adc.bmj.com/ 15. Dugdale AE, Moeri M. Normal values of forced vi- tal capacity (FVC), forced expiratory volume (FEV1.0), and peak flow rate (PFR) in children. Arch Dis Child. 1968;43(228):229-34. 16. Ferris BG, Smith CW. Maximum breathing capacity and vital capacity in female children and adolescents. Pedia- trics. 1953;12(4):341-52. 17. Salinas P, Prado F, Pinchak C, Herrero MV, Giménez GC, García C, et al. Cuidados respiratorios para pacientes con enfermedades neuromusculares. Neumol Pediatr [Internet]. 2017;12(3):103–13. Available from: http:// www.savalnet.cl/revistas/neumo_ped_julio_2017/#8 18. Giménez GC, Prado F, Herrero M V, Bach JR. Alternativas de tratamiento en pacientes con patologías neuromus- culares y afecciones respiratorias. An Fac Cienc Méd. 2017;50(2):79-88. 19. Pinchak C, Salinas P, Prado F, Herrero M, Giménez G, García C, et al. Actualización en el manejo respiratorio de pacientes con enfermedades neuromusculares. Arch Pediatr Urug. 2018;89(1):40-51. 20. Bach JR, Gonçalves MR, Hamdani I, Winck JC. Extubation of patients with neuromuscular weakness: A new mana- gement paradigm. Chest. 2010;137(5):1033-9. 21. Castiglioni C, Levicán J, Rodillo E, Garmendia MA, Díaz A, Pizarro L, et al. Atrofia muscular espinal: Caracteriza- ción clínica, electrofisiológica y molecular de 26 pacien- tes. Rev Med Chil. 2011;139(2):197-204. 22. Bach JR, Saporito LR, Shah HR, Sinquee D. Decanulation of patients with severe respiratory muscle insufficiency: Efficacy of mechanical insufflation-exsufflation. J Reha- bil Med. 2014;46(10):1037-41. 23. Bach JR, Sinquee DM, Saporito LR, Botticello AL. Effica- cy of mechanical insufflation-exsufflation in extubating unweanable subjects with restrictive pulmonary disor- ders. Respir Care. 2015;60(4):477-83. 24. Morel Y, Gimenez G. 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